Friday, March 30, 2012

Specifics about my story

What is Sphincter of Oddi Dysfunction:

Remember, I'm not a doctor or medical professional of any kind, but this is what I understand sphincter of oddi dysfunction to be.

The sphincter of oddi controls the flow of bile (from the liver) and enzymes (from the pancreas). In sphincter of oddi dysfunction, this valve malfunctions and spasms causing it to close. This causes backup of bile and enzymes causing pain and nausea.

How do you treat Sphincter of Oddi Dysfunction:

There are anti-spasm drugs that are available as a conservative treatment for sphincter of oddi dysfunction- although these drugs did not work for me. The most common treatment option is the ERCP procedure. It is a procedure that is done via endoscopy (a tube down your throat) under general anesthesia. The doctor will observe your pancreas and liver, and decide if your sphincter of oddi needs work. If he decides you do indeed have Sphincter of Oddi dysfunction the doctor will cut your pancreatic and liver ducts so they have an easier time distributing juices. He also cuts the muscle of the sphincter of oddi to stop it from spasming.

What my symptoms were:

  • Extreme Nausea- Especially after eating
  • Upper Right Quadrant Abdominal Pain- Especially after eating
  • Very low energy- Tired very easily
  • No appetite
  • Weight Loss- do to no appetite
How I found relief before my ERCP:
  • Zofran- anti nausea drugs were my best friend
  • I also took narcotic pain relievers such as hydrocodone and oxycodone on a regular basis- this is not a good habit but I found it necessary- only take medications prescribed by your doctor.
  • Focusing on a low-fat, easy to digest diet
  • Drinking lots of water
  • Avoiding caffeine, spicy foods, and red meat- these all aggravated my symptoms 
  • Walking- I found that low impact exercise helped me feel a little better. It was hard to do but worth it. 
Who helped me:

Dr. Martin Freeman at the University of Minnesota in Minneapolis, MN. He is a specialist in pancreatic diseases and he and his staff are absolutely fantastic. I had a wonderful experience with he and his team. Even though I endured some complications it was worth it. He gave me my life back and I am forever grateful to he and his amazing team! 

2 comments:

  1. I would love to know more about your diet. I also had a successful experience with ERCP with sphincterotomy 6 years ago. Did you continue the low fat diet after? I did not and recently asked my dr about this and was told that I must follow the diet to prevent re-occurance.

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  2. Wow Megan this is really a great story and I'm glad that Dr. Martin Freeman was able to help you get your life back. So many people fail to realize how debilitating these diseases really can be. I'm going to post a little bit of your story on my site http://www.sphincterofoddi.com and link back here!

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